Archives for October 2016
FAIRBANKS – When Tracey Porreca saw a photo of her son atop a mountain near Hatcher Pass last July, she cried. For the first summer in his 25 years of life, Nicholas Sandrock had reached the summit. It was a sight Porreca didn’t think she’d ever see.
When Sandrock was born, it immediately was obvious there was something wrong. He was limp and his muscles were flabby. As years passed, he couldn’t walk and was delayed developmentally. His bones were soft and “it was like there was no bone on the top of his head.”
Porreca is a Delta Junction photographer who was living Outside when Nicholas was born. She said she had issues as a child — her front teeth fell out when she was 2, she had trouble learning to walk and always had trouble keeping up with other kids. But she passed her military physical, barely, and went into the Navy. She got married and her first child had some of the same problems Porreca had, but her second was healthy. Then Nicholas was born.
Nicholas was very ill and spent much of his childhood in a wheelchair because he couldn’t walk long distances. He never could ride a bike because he didn’t have the muscle strength and he had more than a dozen surgeries, but he eventually improved and made it to adulthood. In February, he started taking the new drug.
“And just in July, I think it was, he sent me these pictures and he climbed one of the mountains at Hatcher Pass with his buddies,” she said. “You can see Independence Mine and it’s like this little itty bitty, you can barely even tell it’s a building off in the distance. And I cried.”
Click here for the YouTube video that Tracey put together of some of the kids with HPP, to see who the awareness campaign benefits.
Fairbanks Daily News Miner
Next week we’ll continue with my Ten Basic Principles.
Thursday, November 3, 2016
TIME: 5:30 PM
PLACE: School Board Conference Room
The Delta/Greely School District provides each student with opportunities to become a
responsible and productive member of society.
Richard Mauer, President
Dana Mock, Vice President
Eileen Herman, Treasurer
Barbara Parker, Clerk
Joseph Mock, Student Representative
LTC Detrice Mosby, Military Representative
A. Call to Order
B. Roll Call
C. Pledge of Allegiance
D. Correspondence to/from Board
E. Discussion Items
1. Four Day School Week Committee Report Discussion – Public Comment
2. Report Card to the Public – Public Comment
3. 1st Reading Policies 5000 Series – Public Comment
F. Future Meetings
2. Business Meeting November 17, 2016
G. General Comments from the Public
H. Comments from the Board
Board Goals for 2016 ~ 2017
1. Facilitate the planning, programming, budgeting, execution and reporting of a short and long term maintenance
2. The board will establish key indicators of District success.
3. The board will oversee the on-going implementation of the strategic plan.
4. The board will assess the budget to identify areas for further efficiencies and revenue opportunities.
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